RESOURCESFOR INDIVIDUALS WITH DEMENTIA AND THEIR CAREGIVERS
Navigating dementia, whether you’re experiencing it yourself or caring for someone who is, can be overwhelming, emotional, and often confusing. Dementia involves changes in memory, communication, behavior, and daily functioning, which can lead to moments of frustration, agitation, or disorientation for both the individual and their caregivers.
Because these challenges can feel difficult to manage alone, it’s important to know that many reputable organizations offer guidance, education, and community support. We’ve gathered a selection of trusted local and national resources that provide practical tools, caregiver training, safety programs, information on legal and medical decision-making, and opportunities to connect with others facing similar experiences. Reaching out for support can make a meaningful difference, offering stability, relief, and a stronger network throughout the dementia-care journey.
national
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The Alzheimer's Association provides information, tools, and resources for understanding life and caregiving with Alzheimer's and dementia.
Alzheimer's Association Resources
Resources specifically for Asian Americans & Pacific Islanders
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The Alzheimer’s Association 24/7 Helpline is a free service offering support for people living with dementia, caregivers, families, and the public. Connect with a live person who can provide information, local resources, crisis assistance, and emotional support. The hotline is open around the clock, 365 days a year. Through the website, you can also live chat with Helpline staff from 7am-7pm CT daily, or submit a form to let the staff know how they can help you.
24/7 Helpline: 800-272-3900
Learn more about the Helpline, live chat with staff, or submit a form with questions
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Alzheimers.gov is the official US government website, managed by the National Institute on Aging at the National Institutes of Health. They have information about Alzheimer’s and related dementias, tips and resources for people with dementia and their caregivers, and information about clinical trials and dementia research.
Tips for Caregivers
Remember that being a caregiver can be difficult and sometimes overwhelming. It’s important to not only take care of your loved one, but to be sure you’re also taking care of yourself and asking for help when you need it. -
GAPS is a documentary from the National Institutes of Health that details the experience of Trang Tu, an Asian American woman caring for her mother, who is living with Alzheimer’s. In the film, Tu shares the difficulties and pressures of caring for her mother as an Asian-American and dealing with a system that has not yet fully understood and provided the resources to minorities. These same topics are also discussed in the documentary with professional healthcare experts from various organizations and universities, including the Alzheimer’s Association, University of Washington, and the University of California, San Francisco.
Local / NYC
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CaringKind is New York City’s leading expert on Alzheimer’s and dementia caregiving. They offer a Helpline staffed with Dementia Specialists, individual and family consultations, a vast network of support groups, education programs, early stage services, and a wanderer’s safety program.
Helpline: (646) 744-2900
CaringKind’s helpline is staffed with Dementia Specialists -
CaringKind’s signature Connect2 programs provide enriching opportunities to connect through creativity, conversation, and community. Programs include Connect2Culture®, Connect2Music, Connect2Cafe Series, and Connect2Sports.
Connect2culture® creates and promotes engaging non-clinical opportunities for people living with dementia together with their caregivers to stimulate conversation, memories, and connections through shared cultural experiences.
Connect2Music uses the transformative power of music to bring people together, awaken memories, and inspire emotional connection.
Connect2Cafe Series is a welcoming memory café where people living with dementia and care partners share conversation, laughter, and community, including a Spanish-language Connect2Cafecito—offered both in person and virtually.
Connect2Sports celebrates the spirit of sports through reminiscence and interactive programs that encourage storytelling, movement, and camaraderie—accessible in person and virtually.
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The NYC Chapter of the national Alzheimer’s Association provides support services, care options, and education for families and caregivers in New York City.
This chapter has programs in English, Spanish (en Español), and Chinese-Mandarin (中文普通話课程).
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NYU Langone’s Alzheimer’s Disease and Related Dementias Family Support Program offers comprehensive services, including care consultation, resources, education, and cultural experiences free of charge, online and in person for family caregivers in Manhattan, Brooklyn, and Staten Island. They will also refer caregivers from other areas to appropriate local resources.
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NYC Department for the Aging is a government department whose mission is to eliminate ageism and ensure the dignity and quality of life for the approximately 1.775 million older New Yorkers. They are dedicated to helping older adults age in their homes and with caregiving, giving support to those impacted by elder abuse, and providing resources for caregivers, including information on older adult centers and social adult day care.